POTS Resource Hub
Welcome to Northground’s POTS Resource Hub.
This is your one-stop spot for key information, links, and resources about POTS and dysautonomia.
We recommend bookmarking it so you can easily keep up to date with our expanding suite of resources.
Spotlight - we have chosen the powerful mini documentary below as our resource of the moment, please enjoy and feel free to share with others who need to hear its compelling message.
“POTS: An Invisible Illness” Explore the hidden reality of Postural Tachycardia Syndrome in this compelling mini-documentary. Featuring experts from Mayo Clinic and Johns Hopkins, the film highlights the daily struggles of patients and the critical role that physician belief and specialised care play in transforming outcomes and quality of life.
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To help explain the neurological benefit of therapy for physical health issues such as POTs and other dysautonomia, we have addressed some of the frequently asked questions that come up.
If you are at the start of your POTS experience and want to better understand the body-mind connection to this condition, here are some helpful blog posts topics:
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When you have POTS, your body’s "alarm system" (the nervous system) is often stuck in the "On" position. This can make your heart race and leave you feeling "wired but tired."
These exercises that are like a "reset button" to tell your brain that you are safe and it’s okay to settle down.
Somatic Regulation Master Guide (workbook)
Simple calming exercises (cheat-sheet)
Vagal toning exercises (blog post)
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1. Foundations & Patient Advocacy
The Australian POTS Foundation: The primary peak body in Australia. Excellent for finding POTS-aware doctors, patient stories, and local support groups.
Dysautonomia International: The global "gold standard" for research and education. TheirPOTS Page contains in-depth scientific explanations.
Standing Up To POTS: A research-focused NGO that provides great "POTS 101" brochures for schools and workplaces.
2. Clinical Research & Exercise (The "Science")
Baker Heart and Diabetes Institute: Based in Melbourne, they are leaders in Australian autonomic research. They provide specific information onExercise & POTS.
ADARC (SA): The Australian Dysautonomia and Arrhythmia Research Collaborative. This is the team behind the 2025 Australian POTS Registry data we've been using.
The Levine Protocol (CHOP): The Children’s Hospital of Philadelphia (CHOP) provides the most widely used "graduated exercise" PDF for POTS patients globally.
3. Government & Public Health
Healthdirect Australia - POTS: The Australian Government’s primary health portal. Useful for a high-level overview and "when to see a doctor."
Services Australia (NDIS & Disability): Links to theNDIS Access Criteria for those whose POTS has become significantly disabling.
4. Managing Comorbidities (The "Zebra" Connections)
The Ehlers-Danlos Society: The best resource for patients who have comorbid hEDS (hypermobility) alongside their POTS.
Emerge Australia: Specifically for those experiencing ME/CFS or Long COVID symptoms alongside autonomic dysfunction.
The Mast Cell Disease Society (TMS): For patients investigating MCAS (Mast Cell Activation Syndrome) as a trigger for their flares.